Wednesday, September 30, 2009
Tuesday, September 29, 2009
Sunday, September 27, 2009
Maren has a clinic appt. on Tuesday morning. If her lab values are high enough she'll start the second half of DI with a lumbar puncture and almost a full day of IV fluids (enough that the Ctyoxan won't be toxic to her system), and come home with her port accessed so that a home nurse can give her IV chemo over the following 4 days. She'll also get chemo in tablet form every night for 2 weeks. Please pray for her continued health during this time, that she won't get too curious and pull her port needle out, that the port will not get infected, and that she won't need any ER trips or hospital admissions. Please pray for my peace of mind as I tend to get really nervous about her temperature changes (the Ara-C that she'll be getting from the home nurse can cause fevers on its own). Thank you so much for praying.
Saturday, September 26, 2009
Tuesday, September 22, 2009
Monday, September 21, 2009
Sunday, September 20, 2009
Need I say more?
Collecting chestnuts. Jeremy is determined to collect them all and roast them.
The haircut twins.
Friday, September 18, 2009
Thursday, September 17, 2009
I am thankful she can still walk. She doesn't necessarily want to all the time, but she can. I am thankful for two friends who stopped by today to bring meals and chat outside. I am thankful we are home. I am thankful for a thoughtful friend who stopped by the other day with a Netflix gift subscription - while I was on hold with the hospital and insurance company earlier I was able to watch the better part of a documentary. I am thankful for a sister-in-law who sent a funny email that made me laugh today. I am thankful that my children have awesome grandparents and great-grandparents to give them memorable birthdays. I am thankful for friends who unexpectedly send packages for the little ones that light up an otherwise dreary day stuck at home. I am thankful for a MOPS group that is 5 months later still heck-bent on providing meals and prayers. I am thankful for all of you new readers and the old faithful readers who take some of your time(which we all need more of) to check up on Maren, to think of us, and go through this with us in thought and prayer; thanks to all of you, I have not, even for one second, felt like we were doing this alone. I am thankful that God is good.
The house is a disaster - post birthday party mess, and dishes galore due to Maren's current food obsessions, and I just walked into the kitchen to see that Elijah had taken a crayon to the wall and drawn gigantic ocean waves. I didn't lose my cool though -admittedly rare for me- and I gave him a "pass" after reading about an 8-year old girl named Anika who passed away from relapsed ALL in July. Her dying wish was for parents everywhere to give their children a free pass the next time they misbehaved. So Anika, I now have a lovely ocean scene in my kitchen. Thank you, I just might enjoy that.
Sorry I didn't get these up last night. I fell asleep earlier than I planned. Taking a little rest on the bed turned into sleeping in my clothes all night.
Wednesday, September 16, 2009
Clinic went fine yesterday. Maren got her treatments with no problem and we were actually out of there in less than 2 hours. Her ANC was 800, and her platelets were 156,000. Dr. Randy said this was on the low end of normal for this stage. I'm guessing her ANC will go back up because she started her steroids again yesterday, so that ought to give her a little boost for the week.
Elijah B. turned 4 yesterday. We had a fun dinosaur-themed day, and I think he loved every minute of it. I felt bad having to leave him to go to clinic on his birthday, but luckily Grandma was here and the Birthday Bird (I'll explain later) came, so I don't think he even missed me. I'll post pictures later today.
Monday, September 14, 2009
Sunday, September 13, 2009
Thursday, September 10, 2009
She's still hanging on to a thin layer of hair, but the back seems to be falling out at a faster pace than the sides. We might wait another week or so before cutting it ourselves and busting out some Fall hats. I watched a video on youtube about how to knit a basic child's hat, but my self-diagnosed adult-onset ADD prevented me from viewing the entire video, and so even if I understood all that lingo, I would only end up with 2/3 of a hat. That's what online shopping is for! (Jeremy and I disagree on whether self-diagnosing and online shopping are good isolation hobbies. If you have any other suggestions, I am open to them.)
3 hours later. Ok, after some thought I decided I should clarify that I really don't spend inordinate amounts of time self-diagnosing and shopping. I try to keep my house somewhat orderly (although my mom and mother-in-law may tell you otherwise), research leukemia, read, slowly but surely write overdue thank-you notes, watch Monk, and feed the kids. Um, I guess that doesn't sound a whole lot more exciting, so I am still open to suggestions. Sheesh, I just wanted to clear that up, because I had this horrible thought that someone reading this may have taken me seriosly.
Wednesday, September 9, 2009
Maren's appointment went well yesterday. She started screaming for french fries as soon as we got there (thanks to the steroids), so the clinic staff did their best to get us out of there as quickly as possible. Maybe she should scream for fries every week =).
Her counts were good - ANC was 4700 (this about where your's or mine would be on a given day). This was by far the highest ANC she's had since the beginning. The day she went to the hospital it was 0. Her immune system had been eaten up by the leukemia itself, not the chemo. So she is doing well even though the numbers are "artificially inflated" by the steroids, I feel better knowing that she probably won't get sick from some random mold spore or get the swine flu just by looking at somebody.
She woke up just a tiny bit cranky and then ate 5 pieces of bread with butter, but overall seems to be doing, much, much better than she was the day after chemo last week. So far, Delayed Intensification is going 1,000x better than I had expected it to. Your prayers are truly appreciated.
Monday, September 7, 2009
Saturday, September 5, 2009
Scoping out the buffalo.
This is the best we could do for a family picure.
Friday, September 4, 2009
Thursday, September 3, 2009
Wednesday, September 2, 2009
- a little fever
- Delayed Intensification, Day 28/56, Time warp
- Quick update
- Home sweet home . . .
- Delayed Intensification, Day 21/56
- Delayed Intensification, Day 20/56, giving steroid...
- Swings and Haircuts
- Delayed Intensification Day 17/56
- I didn't expect the steroids to affect Maren so mu...
- Elijah Blaine
- Clinic Chronicles, Delayed Intensification, Day 15...
- Delayed Intensification , Day 13/56
- Delayed Intensification, Day 12/56, N...
- Day 10/56, Looking Good and Going Strong
- Delayed Intensification Day 9/56
- Delayed Intensification, Day 8/56
- Lovin' Labor Day
- Adventures in the Woodlands - Take that Day 4
- Delayed Intensification, Day 3/56
- Answered Prayers
- Delayed Intensification, Day 1/56
- ▼ September (22)